Rare Disease Parenting and the Power of Community w/ Effie Parks

Send us a text Receiving a rare genetic disease diagnosis for yourself or a loved one is devastating news, especially when the diagnosed is a child. For families, navigating the challenges of these diagnoses requires more than just medical care, it takes a strong, compassionate support system. In this episode of CareTalk, David E. Williams and John Driscoll sit down with Effie Parks, advocate and host of the Once Upon a Gene podcast, to dive into the critical role of community during a rare...