Ep 10 - Foundation for Prader-Willi Research
Walking with Freya - Een podcast door Anne Fricke
Categorieën:
Without research and the knowledge gained from this research, most of our kids and adults with Prader-Willi Syndrome would face more difficulties in their lives. Thankfully, with the continued effort of the Foundation for Prader-Willi Research, there are new treatments and understandings of the challenges with PWS. This episode is an interview with Susan Hedstrom, the Executive Director of FPWR and fellow PWS mom. She speaks on the who, what, how and why of FPWR.
